#JoinTheConversation with Regina Holliday, Founder of The Walking Gallery at #HIMSS17
This #JoinTheConversation series is brought to you by our partner Experian Health and the episodes were broadcast live in Experian Health’s booth (#3503) at the The HIMSS17 Annual Conference and Exhibition. The interviews were recorded and published to the media player on this page. Please read more about why more than 60% of U.S. hospitals count on Experian Health.
Regina Holliday, Founder, The Walking Gallery of Healthcare
Joe Lavelle 00:31 All right, I am Joe Lavelle and I could not be more excited to be bringing you #JoinTheConversation with my co-host Todd Eury right here from HIMSS17. Todd, let’s give a quick shout out to our sponsor Experian Health.
Todd Eury 00:43 You know I’ve been here all day long and this place is just buzzing. Experian Health provides industry leading revenue cycle management, identify management, patient engagement and care management solutions that power opportunities in today’s value based health care environment. I can’t think of a better partner to help make that shift to a value based world than Experian Health.
Joe Lavelle 01:05 Absolutely, but we’re even more excited about our distinguished guest today Todd. Regina Holliday, creator of the advocacy movement called “The Walking Gallery of Healthcare”. Regina, welcome to the show!
Regina Holliday 01:17 Hi! I’m so glad to be back.
Joe Lavelle 01:19 Oh, we couldn’t be more happy to have you. Regina tell us all about The Walking Gallery a little about the background and why there’s so many people walking around with great jackets on.
Regina Holliday 01:29 Okay, so I was just showing people the jacket I was wearing at this trade show. It’s called the MIB, the Medical Information Bureau, and on the back of this jacket that I’m currently wearing, there are patients with their johnnies open, you can see their bottom and people are laughing at that, and I’m like if you paint a person into a painting and you have their Johnny open you know immediately that is a patient, there is no question it’s a patient. And so it’s a really, it’s a joke, right? But it’s also a way to disempower a person. Take their clothes away, take their status away, take their name away, takes everything that makes them them away and that’s the point that a lot of us advocate from, and that is why The Walking Gallery has paintings on the back of business suit jackets. Because we take a symbol of power, a symbol of the patriarchy and the idea of these are the important people, and then we smack on the back of that a patient’s story. We take that place of power and we grab it and we go from that place that we were disempowered, right? So this is a very radical notion, the idea that we can take this garment and tell our stories and through those stories, then change policy and change the way we talk about health care. And I am so very glad that you have joined the movement.
Joe Lavelle 02:54 Me too. It’s a privilege.
Todd Eury 02:55 Patient engagement is a buzz word and some organizations will throw that around to I think capitalize on the fact that it is a buzz word, but that’s the heart, the patient advocacy and patient engagement is the heart of what is The Walking Gallery. And to you what does that mean when I say patient advocacy, what is your definition of patient engagement?
Regina Holliday 03:19 Well, I’ve actually painted that one, had a swirling ring in the, when people hear the word engagement in the regular world it’s like congratulations! When is the happy day?
Todd Eury 03:32 Right.
Regina Holliday 03:32 So the term in the health care, unfortunately, is often times truly a buzz word;, it is poorly utilized, I mean the ideas, I actually heard, you know last year was patient engagement and this year was focused more on MIPS. You know it’s like oh! My Goodness! You should be focused on patient as partners forever, because that’s what healthcare is supposed to be about. So I’m not overly fond of that term, no. Patient advocacy is important in that you must provide this for everyone you love, right? Because if you have a loved one in the hospital in the current system that we live in today, you better be there as their advocate.
Joe Lavelle 04:11 Right.
Regina Holliday 04:11 Someone has to be. Now I’m going to call the patient activist, so that means I have gone beyond just helping my one loved-one patient or my family member patient to the world of health policy and doing everything I possibly can to change healthcare policy on a national, regional and local basis and make it better for all patients.
Joe Lavelle 04:32 Regina, I have to tell you, I just cringed when you said the, you know, we are focused on MIPPS and not patient’s engagement this year, let’s forget about that, let’s forget about that happened. Let’s talk about providers, how should providers today be looking at patient engagement? What should they be doing?
Regina Holliday 04:47 Okay, so we are still back to the basics. Patients need to be able to get their medical record; they need to be able to get to it in a real time fashion. They need to be able to then amend the medical record and add their own viewpoint of what happened in the patient encounter, all of these need to be done in a real time fashion. This is basic stuff that we’ve been talking about for 7 years at this point, okay? Once we get to a basic understanding of access to data, then we can build from there, but until we have this vital step, we can’t do a lot. Okay? Everything is a band aid to fix the situation that, it’s like having one entire half the population who cannot read and has no access to books, yet we expect them to become part and own it, have skin in the game, you know, how are we going to change healthcare if we don’t become equal?
Joe Lavelle 05:37 All right. I’m going off script. Regina, so I have two stories they are not on my back.
Regina Holliday 05:44 Yeah.
Joe Lavelle 05:44 This year I went to a hospital in Melbourne, Florida over Thanksgiving I went to visit my Mom. Yurns out I got some issues related to clotting, and so I go to the hospital. My doctor back home still can’t get the records from the hospital in Melbourne, Florida. Three months tell me what I need to sign, tell me what I need to
Regina Holliday 06:06 Your doctor can’t get it?
Joe Lavelle 06:07 Right.
Regina Holliday 06:07 That’s insane.
Joe Lavelle 06:08 My doctor at home can’t, still hasn’t seen what happened during that emergency room visit. For all the 7 years, that’s nonsense, my medical record at home only has test results. It doesn’t have progress notes, it doesn’t have doctor notes, they’ve decided that what they expose are blood tests and radiology reports and okay its progress, but I’m not good with this.
Regina Holliday 06:39 No, it’s not good enough. I mean it’s like the reliance on the hard science versus the soft science, right? So this is hard and we have numbers and numbers are easy to quantify and this is the soft stuff of what the doctor actually said in the encounter, and the soft stuff is what people actually utilize and go home and act upon, so we’ve got to have that accessible which brings us to the Open Notes projects of course. So Open Notes projects still going strong the () study was released in 2012 showing that if patients had access to their date and 80% inherence to medical protocols. Okay, big deal stuff, I mean this is good good things, but you know, it is one of those under funded projects, it’s a none profits, it’s trying to get the word out nationwide actually worldwide to the idea if we just opened up the notes and made them that people can read them, it’s going to save lives, it’s going to make healthcare better.
Todd Eury 07:31 Regina, what organizations out there, I can guess who doesn’t get it, but what organizations out there kind of get this concept and are leveraging what is patient engagement and what is the seamless data sharing and who do you think gets it?
Regina Holliday 07:48 Well, I think there is varying degree of gets it.
Todd Eury 07:51 Okay.
Regina Holliday 07:51 Okay? So I mean there is of course organizations like Planetree that has been working on this for a very very long time. The idea that they’d be the warm hand off for families and doctors and the nurses are all together, do a warm hand off and there is data every single day that you have access to while hospitalized. That’s really great, but that’s of course only the facilities that have bought into the plain tree concept in a part of that system.
Then there is independent little hospitals all over the country that are starting to try to do this kind of thing, often times to utilize open notes of course to become part of a greater family. There is the learning health system, the idea that we can sort of create a cooperative where everyone is working together with a group, and within that group that we would be able to access data of course outside of the group, you know that’s not open data, right?
Todd Eury 08:39 Right.
Regina Holliday 08:40 So it’s one of those things that, Geisinger Health was part of the original Open Notes study and they still embraced large portions of that. Beth Israel Deaconess also understands the importance of releasing those doctor’s notes making it available. There’s even a little, in my little part of the country Garrett County, we have the Garrett Regional Medical Center affiliated with WVU that’s trying to do some of the stuff. It’s just a whole bunch of stops and starts nationwide. Part of the problem is this technology, we need to make it easy to, like I’m excited to blockchain and what the possibilities there are. Because the reason we keep saying we can’t get to it on our phones is because it’s not secure. It’s not secure, it’s not encrypted. Well, hey! Okay, so let’s encrypt that thing.
Todd Eury 09:24 Exactly.
Regina Holliday 09:25 So we can actually get to the data.
Todd Eury 09:26 Right.
Joe Lavelle 09:27 All right, Regina. What do you have planned for The Walking Gallery in 2017? I know you got a big event coming up, what else?
Regina Holliday 09:34 Well, I had a lot of people die on me this year. So we lost our first walker on The Walking Gallery, we lost Jess Jacobs. She was only 29 years old and her diseases were not fatal! But she was hospitalized and discharged and hospitalized and discharged, then she fell through the cracks and she died. And then we lost Jerry Macia very recently with Lily, he is a major proponent for open clinical trials. So those are two members of The Walking Gallery gone.
So, everybody’s been saying “Regina your painting so many jackets. Regina your painting so many jackets.” I am painting so many jackets because we do not know when will be our last day in this world. And we have to do what we can to spread these stories and get policy change, right? So what I’m asking everybody to do is work your hardest right now. We lost a lot of our infrastructure in healthcare this year. A lot of our friends are gone now; they’ve moved on, they are in private industry.
We’ve got to start building those networks again. We’ve got to find out who are people we are going to be working towards these goals in this new administration. Because healthcare should be bi-partisan. We should be all working together for patients. So, I’m going to work my darndest to make sure that we get these things and they happen as soon as possible.
Joe Lavelle 10:56 All right. You have a big event coming up in May. Tell us about that.
Regina Holliday 10:59 Oh yeah, my Cinderblocks conference. So we will be on our fourth year of the Cinderblocks conference in Grantsville, Maryland. We have fire dancers, traditionally Ross Martin sings and he is a doctor. We have other people who are in healthcare and the arts. All get together and just have an amazing time meeting each other, learning about each other, mentoring each other so they can speak out and get these stories around the world.
So that will be happening May 18th through 20th, and of course we would love you to come down. I have an arts building that I’ve have created in Grantsville, Maryland that we have people who are staying there. They are coming out and just enjoying a beautiful surroundings in Appalachia with almost no Wi-Fi, and learning what it’s like for the rural part of America to actually implement the stuff we are talking about.
Joe Lavelle 11:51 Outstanding.
Todd Eury 11:52 So, Joe always brings his crystal ball to the HIMSS conference and we always put it on the table and ask our guests about the evolution of their passion, so where do you see patient engagement evolving over the next 3 to 5 years?
Regina Holliday 12:09 Well, I mean I want it to become patient partnership and that’s what we really need to be at. So just like your smart phone changed everything. Who has a camera anymore nowadays?
Todd Eury 12:22 Right.
Regina Holliday 12:22 Right, I mean a flashlight?
Todd Eury 12:24 True.
Regina Holliday 12:24 I mean it’s like it’s all gone. Right? Because this one device and I think we have to have that same kind of equalizing thing happen within healthcare. I mean I know people talk about a Tricorder project, but that’s really focused more on doctors. We’ve got to have that utilization on technology and some of this maybe legislation to make sure that we can do telehealth across state borders, because there is no reason why you should not be able to get a lot of the medical care that you need through your phone.
Todd Eury 12:48 Absolutely.
Joe Lavelle 12:50 Amen on across state borders for telemedicine, but that’s a whole other show and a whole other topic.
Regina Holliday 12:56 That’s another wall that we can crack in a different day.
Joe Lavelle 12:59 Exactly. Regina, what are your top couple of goals while you are here at HIMSS?
Regina Holliday 13:02 Well, I’ve been walking around all the booths today which is really exciting. Tomorrow and the next day I’ll be at the Conduent booth painting, which is always exciting as well because people come to me and I don’t have to walk quite as much. But I’ve really enjoyed how nice everybody is this year. I don’t know if you guys noticed this, but very nice people are very nice this year.
Todd Eury 13:24 Maybe it’s sunny Orlando, maybe it’s the sunshine right in the Bee.
Regina Holliday 13:26 All I can think is this you know, yeah there is some sun and it does make a difference.
Joe Lavelle 13:30 We’re long past meaningful use stages one and two which were much more
Regina Holliday 13:35 You know I did a painting that I did meaningful use one and two and then three was like a ghost and people are like, oh! Your painting all your ghosts and I’m like I’m not sure if it’s ever going to happen. This was years ago and then they are like. Yeah you are right.
Todd Eury 13:49 Have you ever painted a pharmacy specific jacket?
Regina Holliday 13:51 Yes. Well, jacket paintings, yes. I’ve done a canvass specific to pharmacy. I’ve done pharma based, like clinical trials and things like that. But there’s not been a lot of requests from the world of pharmacy.
Todd Eury 14:10 Right.
Regina Holliday 14:11 to join The Walking Gallery.
Todd Eury 14:12 We should do that.
Regina Holliday 14:13 Yeah you should.
Todd Eury 14:14 I would have you on a Pharmacy Podcast show.
Regina Holliday 14:16 Yeah, but I have done paintings about this. So the script for your future competition.
Todd Eury 14:19 Oh okay.
Regina Holliday 14:20 I painted about that.
Todd Eury 14:21 Very good.
Regina Holliday 14:22 So, yeah.
Joe Lavelle 14:22 Regina, I’ll gave you the chance to answer this, I get asked all the time certainly when I’m wearing my jacket. How would somebody else join the movement and potentially get the jacket of their own?
Regina Holliday 14:32 So, all they have to do is Facebook or Tweet or e-mail me and say I would like to join The Walking Gallery. And then I send them back this post that says “How do you join The Walking Gallery?” And it gives them all the information but the major hang ups if a person doesn’t join is usually because of this. One you have to tell your story, right. So it’s supposed to be your story. Your center why you care so very much. Two because you have to be on social media. So, some doctors, some individuals are not out, right? They do not, and you really do have to be on social media. We are a flash mob, so we organize via social media’s that means Facebook, Twitter. I need to be able to communicate with you.
After that the major thing is, it’s your jackets. And it’s does need to be a jacket that is a business suit jacket or a blazer. It’s not a jean jacket.
Todd Eury 15:20 Okay. Very good.
Joe Lavelle 15:22 Awesome. Regina it looks like we are up against the clock, before we let you go, where can people go to learn more about the great work you are doing with The Walking Gallery.
Regina Holliday 15:29 I’m Regina Holliday like everywhere. So you can find me Regina Holliday on Pinterest and on Twitter and on Facebook. So LinkedIn, you try to find me you will find me.
Joe Lavelle 15:38 All right, just Google Regina Holliday and The Walking Gallery at the same time.
Regina Holliday 15:42 There you go.
Joe Lavelle 15:43 And you will get everything you need to know.
Todd Eury 15:44 2 L’s, double L.
Regina Holliday 15:46 Double L. yes.
Joe Lavelle 15:48 Perfect. Regina it was so great having you. Thanks for stopping by. Thanks for joining us making the time.
Regina Holliday 15:53 Thank you so much, it was our pleasure.
Joe Lavelle 15:55 Absolutely. It was our pleasure, indeed. And Todd that’s going to wrap this broadcast from #HIMSS17. One more time a quick shout out to Experian Health. On behalf of our guest Regina Holliday and my co-host Todd Eury. I’m Joe Lavelle and we know you’ll stay tuned for more Intrepid HealthCare’s great coverage of #JoinTheConversation from Orlando.
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